{"id":235121,"date":"2026-05-27T15:08:25","date_gmt":"2026-05-28T01:08:25","guid":{"rendered":"https:\/\/www.hawaii.edu\/news\/?p=235121"},"modified":"2026-05-27T15:08:25","modified_gmt":"2026-05-28T01:08:25","slug":"registry-seeks-feedback","status":"publish","type":"post","link":"https:\/\/www.hawaii.edu\/news\/2026\/05\/27\/registry-seeks-feedback\/","title":{"rendered":"Red Hill Registry seeks community feedback to increase enrollment completion"},"content":{"rendered":"Reading time: <\/span> 2<\/span> minutes<\/span><\/span>

\"Red<\/p>\n

Co-designed with the community, the Red Hill Registry<\/a>, facilitated by the University of Hawaiʻi<\/span>, aims to track health outcomes to inform future research and clinical guidance on fuel exposure and provide resources for those who experienced the fuel spill. To date, the registry has pre-enrolled more than 2,600 participants. According to the U.S. Environmental Protection Agency, approximately 93,000 U.S. Navy water system users were impacted by the contaminated drinking water<\/a>.<\/p>\n

Joining the registry is a two-step process. First, is the pre-enrollment questionnaire followed by either a baseline or expanded questionnaire, depending on how, when and where you used water. Of the more than 2,600 pre-enrolled participants, only 423 have completed their baseline or expanded questionnaires. Registry staff continue to follow up with participants who have not yet completed the process.<\/p>\n

“The Red Hill Registry is seeking community input to gain insight on how to increase its completion rates,” said Sanie Weldon, director of the Red Hill Registry. “The feedback received directly informs how the registry improves its tools, communications and support efforts.”<\/p>\n

The National Academies of Sciences, Engineering, and Medicine released a report in March 2026 which emphasized the importance of continued data collection via the Red Hill Registry<\/a> to understand links between jet fuel exposure and health effects as well as community-driven efforts related to the Red Hill water crisis.<\/p>\n

Whether you are an enrolled participant or experienced the water crisis and have yet to enroll, the registry invites everyone to visit the website<\/a> to learn more and participate<\/a> in either the community survey or a virtual focus group.<\/p>\n

Community Survey:<\/strong> 15-minute survey seeking feedback on your experience with the Red Hill Registry and its support tools.<\/p>\n

Virtual Focus Groups:<\/strong> 2-hour sessions available between June 8 and June 19, 2026. Times will vary to accommodate participation from around the globe.<\/p>\n

If you have any questions about these feedback opportunities, registry staff can be reached by email at info@redhillregistry.org<\/a> or by calling 808-427-8260 between 8 a.m. and 4 p.m. HST<\/abbr>.<\/p>\n","protected":false},"excerpt":{"rendered":"

A new report in March 2026 emphasized the importance of continued data collection via the Red Hill Registry.<\/p>\n","protected":false},"author":16,"featured_media":219519,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[26],"tags":[165,1467,1363,1600,9,947,1043],"class_list":["post-235121","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community","tag-health","tag-manoa-excellence-in-research","tag-manoa-research","tag-public-impact-research","tag-uh-manoa","tag-uh-system","tag-water","entry","has-media"],"aioseo_notices":[],"aioseo_head":"\n\t\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t